So what has AJ been up to lately?

Well, he is pretty much bed bound. We are hoping with warmer weather that he will tolerate being up in his wheelchair so he can go on his beloved walks.

As far as his stander, when we get him up it hurts him. So, we have stopped that for now.

What does he do in bed all day?

School in the morning. His tutor comes to him.

He loves his new pastime of watching TV, especially Star Trek. He runs a switch that operates light shows and a mobile that we hang stuff off of. Such as streamers, things that reflect light, or anything really that is interesting as it spins.

He is apart of the Washington Talking Books & Braille Library. So he listens to a variety of age appropriate books on tape.

AJ has several therapies during his day. Range of Motion, stretches, and chest PT. The chest PT we do is a vest that has a hose connected to it (kind of like the old hair dryers or a vacuum hose) this pulsates air through he vest. The intent is to bring up any sitting mucus in his lungs. For AJ, it has been a wonder therapy. We have used it for 1 1/2 years. AJ is rarely ill, and if so, extremely mild compared to previous years!!!

Music is another favorite. He is easy going, I have not had him complain about any music that I can remember. We listen to a wide variety. Especially cultural. That has been fun to collect.

AJ continues to use his Springboard for communication. See latest news on AJ's web page for more on that.

His little sisters always bring some excitement into the room.

Have a great day!!!!