Thursday, May 14, 2009







Space, the final frontier....

If you can't laugh at yourself, then someone else can!!=.)
I was surprised how alike Katharine and AJ look.
The cat's could create their own sci-fi characters.
To make your own, visit: http://www.cheez-it.com/

...live long and prosper

Friday, May 8, 2009

Mother's Day


In all I've accomplished in my life thus far, I can say that becoming a Mother has been the most rewarding.
That goes to say the most difficult as well.
I am always amazed at the lessons that surround me. I think some of my best teachers have been my children.

The lessons I have learned from these three little angels make me appreciate even more than what I thought was possible, the love I have for my Mother and Mother in law.

May this Mother's day find you well and enjoying those who mean the most to you.


Thursday, May 7, 2009


So what has AJ been up to lately?

Well, he is pretty much bed bound. We are hoping with warmer weather that he will tolerate being up in his wheelchair so he can go on his beloved walks.
As far as his stander, when we get him up it hurts him. So, we have stopped that for now.
What does he do in bed all day?
School in the morning. His tutor comes to him.
He loves his new pastime of watching TV, especially Star Trek. He runs a switch that operates light shows and a mobile that we hang stuff off of. Such as streamers, things that reflect light, or anything really that is interesting as it spins.
He is apart of the Washington Talking Books & Braille Library. So he listens to a variety of age appropriate books on tape.
AJ has several therapies during his day. Range of Motion, stretches, and chest PT. The chest PT we do is a vest that has a hose connected to it (kind of like the old hair dryers or a vacuum hose) this pulsates air through he vest. The intent is to bring up any sitting mucus in his lungs. For AJ, it has been a wonder therapy. We have used it for 1 1/2 years. AJ is rarely ill, and if so, extremely mild compared to previous years!!!
Music is another favorite. He is easy going, I have not had him complain about any music that I can remember. We listen to a wide variety. Especially cultural. That has been fun to collect.
AJ continues to use his Springboard for communication. See latest news on AJ's web page for more on that.
His little sisters always bring some excitement into the room.

Have a great day!!!!